This article is essentially about the endeavors of a family to secure an experimental new drug the FDA has recently approved for treating brain tumors. The patient, a young girl, suffers from an inoperable brain tumor that has left all those around her hopeless, until now. The FDA has just approved an experimental drug that could potentially cure her. The excitement this engendered was short lived, however, as the family is struggling to find a doctor to treat the patient using this drug. Their apprehension comes from the act that the drug was developed by a heavily criticized Texas doctor, causing others in the field to reject his proposals. The family has chosen to remain optimistic saying they will travel any length necessary to secure her treatment and meet with any physician. Another hinderance is despite the fact that the drug has been approved, the FDA has been very stingy in its distribution. Hope is still alive for the family who are meeting with doctors and attempting to get the medicine.
I think its incredible that new drugs such like the ones that could benefit this family are being produced and approved, but what good are they if nobody can use them? Its difficult enough getting new drugs approved, even on an experimental basis, but once they are, they shouldn't go immediately out of circulation. It's a little bit ridiculous that after all this family has been through, they have to suffer more at the hands of the people who claim to be on their side, by their blatant refusal of aid. I hope this girl gets the treatment she needs and there is wider circulation of the drug.
http://boston.cbslocal.com/2014/03/26/fda-allows-nh-girl-to-try-controversial-brain-tumor-drug/?hpt=us_bn7
Its sad how some people can be so insensitive towards others.
ReplyDeleteIt is so sad that she may not be able to receive the treatment that could save her. I really do hope that the family is able to find someone to treat the girl.
ReplyDeleteIf a patient is dying, who is the FDA to tell them they can't try something, what are they protecting the dying patient from, death?
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